In addition to the other posted stories and scientific publications documenting harms of “chronic Lyme” diagnoses and treatments, below are links to victim stories:
- 60 Minutes: A Prescription For Death? Did Alternative Treatment Lead To Patient’s Death?
- ‘We were suckered in,’ widow says of doctor
- Excerpt from Medical Child Abuse
- Carol Ann Ryser, M.D., Barred from Practicing Medicine and sued by 11 patients for misdiagnosing chronic Lyme disease
- Pa. woman says she was sickened by risky Lyme treatment
- Dangerous unproven treatments for ‘chronic Lyme disease’ are on the rise (paywall-free)
- What to do when your sister thinks she has fake diseases?
- A young woman believes she would have died if she’d continued treatment for chronic Lyme disease
- Lyme Inc
- A Lyme disease diagnosis gone wrong
- Science-based Medicine: Another “Chronic Lyme” VIP disciplined by NY medical authorities: Bernard Raxlen
- Science-based Medicine: “Chronic Lyme” VIP Daniel Cameron disciplined by New York medical authorities
- Florida revokes medical license of “Lyme literate” doctor
- Jennifer Hollis was treating a fake disease with bleach rather than getting help for her depression. She took her own life.
- Dr. David Gorski: Kris Kristofferson: The latest celebrity quackery victim
- CBC: Former Lunenburg councillor misdiagnosed with Lyme disease now told he has ALS
- Quackwatch: Lyme-Related Government Actions
- Teenage Boy With Multiple Pain Disorders
- Surviving Adult Reports Childhood Munchausen Syndrome by Proxy Torture
- Reddit users discuss their false chronic Lyme diagnoses
- A horror story by a patient of Susan Neuber
- Kansas City Star: Who’s left to pay this big verdict?
- A child L.K.
- A man laments his wife going to a Washington “Lyme disease” doctor (Real Lyme is almost non-existent in Washington)
- My mother and her possible Munchausen’s: Lyme disease
- Woman’s Death Connected to Internet Self-Diagnosis
- Author Esme Wang on “Chronic Lyme” beliefs
- A patient’s lawsuit against Leila Zackrison, a “Lyme literate” doctor in Virginia.
- Lyme Warrior No More
- A story about being treated by Daniel Jaller
- Why I Regret My Lyme Disease Treatment
- Charlotte Doctor Accused Of Negligence In Lyme’s Diagnoses (Victims treated by Joseph Jemsek)
- A patient of James Ziobron (a doctor associated with ILADS) describes her experience.
- Medicaid, malpractice complaints face doctor [William Tuley]
- ALS Patient Advocate: Dr. Gregory Bach [of ILADS] never once admitted he was wrong
- Patient: The first thing I tell them is that they should NEVER go to Dr. Bach
- Courthouse News: ‘Bugs in the Biofilm’
- Courthouse News: Doctor Under Heat From Irate Patients
- TV2 Denmark: Camillas mand blev lovet mirakel på tysk klinik: Nu er han død (Camilla’s husband was promised miracle in German clinic: Now he’s dead)
- La Presse: Docteur K (Amir Khadir)
- Sadie Gonzalez from the Netflix series Diagnosis received an unnecessary blood test and 6 weeks of unnecessary antibiotics. A functional medicine quack Leo Galland sent her sample to a shady German lab ArminLabs, which is on our list of non-recommended labs. Danish journalists have exposed shady German Lyme labs.
- Report: Three women injected with colloidal silver, ozone, and hydrogen peroxide
- Vice: The Doctor Can Heal You Now (Exposé of Marvin “Rick” Sponaugle)
- Metro: Woman underwent years of treatment for Lyme disease and needed a wheelchair – but her life was a lie
- Bloomberg Businessweek: Dubious Alternative Lyme Treatments Are Killing Patients (deaths of patients of Marvin “Rick” Sponaugle and Henry Childers, who have both been associated with ILADS and ACAM)
- Chronic Lyme drugs cause life-threatening skin detachment
- Woman dies from illicit drugs after seeing a recommendation on a chronic Lyme forum
- Self: If It Isn’t Chronic Lyme, What Is It?
- Washington Post: Her unexplained jitteriness and weight loss were telling clues (paywall-free link, Mirror)
- Dr. Steven T. Chen, MD: Woman who suffered from a possible drug reaction from needless antibiotics, and her true diagnosis was delayed
- The Guardian: ‘What do I have to lose?’: desperate long Covid patients turn to ‘miracle cures’ (authored by a victim of “Lyme literate”/functional medicine charlatan Chris Foley, MD)
- New York Times: Her Face Started Drooping. What Was Wrong? (paywall-free link, free summary)
- Patient story: My experience & false hope at Nutech MediWorld embryonic stem cell treatment: Beware!!
- Tony Ortega: TRAGIC: Clearwater OT 8 Scientologist, 40, set fire to herself before shooting herself dead [Whitney Mills was near long-time charlatan David Minkoff]
Other consequences of false Lyme diagnosis:
- The Expert Witness Newsletter: Lyme Disease, Thrombocytopenia [NP, EM]
- News.com.au: ‘The doctor gasped’: Woman left her tampon in for two years
- AMA News: Lyme misdiagnosis story from 1991
- 🟦 More on our false Lyme diagnosis page
More resources from LymeScience:
- Legislative guide
- Rogues Gallery
- Good Journalism on Chronic Lyme pseudoscience
- Papers in the scientific literature documenting harms of chronic Lyme treatments
See also:
Science-Based Medicine: Chronic Lyme posts
Quackwatch: Index of Lyme-related government actions